The Pain Game: The Diary of Penny PuppetLegs

The fractured state of pain care in America. The politics and the Law in palliative care. Resources, agencies, links and practical tools for chronic pain patients & the disabled. To review products created to improve the life of the disabled. The hardships faced by caregivers, family and loved ones. The U.S. Pain Foundation, the first group created, developed and run by chronic pain patients, both suffering and healed, will be the loudest voice on this blog.

Tuesday, November 8, 2011

Our Fearless Leader, Paul Gileno, On TV



You will see other videos pertaining to chronic pain after the segment of Paul Gileno. He explains 'Step Therapy' or 'Fail First, which is a tremendous obstacle. Due to the work of all our members, the Bill amendment against ST passed the CT legislature. Even though the insurance industry was over-represented, chronic pain patients in CT have won a very important battle.

Now we in Massachusetts are facing the same problem. No matter what state you are from, you can help by making phone calls, writing about your experience with ST, and so on. Every state will be facing this. The last post listed the Massachusetts issue: I will repost that. I had to tack it on my prior post, b/c I had problems with Blogger last night.


Appeared 11:56 AM
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Labels: all states, CT, Fail First, insurance, MA, Step Therapy, U.S. Pain Foundation
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BLOG PAGES: TOOLS TO EASE YOUR PAIN

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Study by MIT Researcher on Statins Leading to Organ Failure

Alzheimers - Statins and Myoglobin I am including this b/c this deals with the side effects that create muscle pain and weakness. I've just started reading it, but thought I'd call your attention to it. I plan to summarize it.

Happy Place in your Mind From Donna Grace-Plumb

Happy Place in your Mind From Donna Grace-Plumb
‎"When you seek the center of your soul...You will find your own *HAPPY* place." ~~♥~~By Geri-Lynn Rubin Wayt-Advocate~~♥~~

THE PAIN GAME

THE PAIN GAME
WHAT WE SEE

What They See

What They See
What a great parking space!

EMPOWER THE DISABLED

EMPOWER THE DISABLED

MY FRIEND PENNY PUPPETLEGS

MY FRIEND PENNY PUPPETLEGS
DISABLED: WHAT IT IS

Artist A Day

Music, Art and Dance Therapy can do wonders for improving your mood, releasing depressive feelings, and keep your mind off the pain.

By Andrew Carson

By Andrew Carson

The Pain Game: The Diary of Penny PuppetLegs

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Google Voice Works! If I Don't Answer, Leave A Message.

I tested this on my first blog, Needle in a New Groove. It works well. If you are in crisis, or need someone to talk to, leave a voice mail. If I don't get back to you within 24 hours (at most) it means I'm extremely ill or in the hospital. Please don't bother calling Russia or China. Many have tried, and it doesn't work. Remember, I'm not a medical professional, but I am trained both on a Hot Line and as a human being in pain. IF THE NUMBER IS NOT SAVED, IT IS 413-347-9358.

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Purpose of the Pain Game and Puppet Legs' Story

For the past twenty years or so, the rise and demise of pain specialists and pain clinics has been fraught with GAMES. One of the goals of this blog is to reveal some of the attitudes, beliefs, and actions of the medical establishment.
For the uninitiated, those who are suffering with pain most of the time can hardly think straight. I wish pain was not a fact of life, but the reality is the majority of us will experience pain at one time or another.
I think Penny is ready for retirement. From time to time, I know she will turn to her diary, and since I respect her opinion, I will allow her to post whenever she likes.
So while the mission of this blog has somewhat changed, the purpose is to inform, reach out to those who can help us, the chronic pain patient community, and more importantly, reach out to people who experience pain, or have recently received a diagnosis. To that end, I will begin doing new reviews of products that can be of help to us all. The fact is that once pain is not treated aggressively, you become fully disabled like Penny and me.
In addition, I will post Links to Organizations, resources, and medical sites to get what you need and to what you are entitled. You paid into the system; now it's time for the system to live up to its obligations.
Any specific questions? Put them in a comment, and I will answer ASAP.

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Join us at United States Pain Foundation, the first such entity founded, directed and staffed by both current and former pain patients. The USPF, I think, is important for our own self-esteem, taking control of our future, our destiny, and uniting the entire chronic pain community. I have a lot of faith in U.S.P.F. and its Director and other members. Please check us out at http://uspainfoundation.org/members. Visit our page on Facebook. Or Like us above.

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If there is one thing I can't stress enough....

No matter how much pain you are in, don't be impulsive and "check out." There is always so much more to live with. Down below, you will find links for help. If you feel like ending it, I urge you to go to the American Pain Foundation's web site. You will find one page that will reset the way you are thinking.
Besides that, the APF has lists of doctors and associations that can help you. I'm here to direct you to the right places to get help, and so you realize YOU ARE NOT ALONE! Write me a post, describe your feelings, and I'll respond as quickly as possible. Sometimes, I'm too sick to check my mail. Your next step is to go the APF website. (to be cont.)

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Every Day is a Holiday: Just pick your own

As chronic pain sufferers, we often don't have the opportunity to share in festivities with friends and loved ones on the holidays.
So, I am shameless stealing an idea from Phil deFranco (he will give his blessing on this): Pick a holiday every day that you can. For example, today was "Live like it's 1996 when I was a hottie, and was in Bermuda with those Sailors" day. So I'm listening to Stereo MC's, and get dressed up and go out. Or try. What's your holiday today?

My Blog List is Incomplete...

And if I'm doing things right, it will always be complete. I have so many blogs that I'm following, through different channels, that it will take time to gather them all together.
At the same time, I've added blogs or websites that have a more cultural edge, such as Medflix, that discusses different movies having to do with the medical field, or photography blogs that may help you focus on something other than your pain. Remember, there are videos on other pages that will help you meditate, chant, stretch with yoga, or be lulled by guided imagery.
I said this list will be incomplete, b/c I hope to add and find great stuff to add. The same can be said for the videos. I'm open to all requests and suggestions.

My Blog List

  • AlterNet.org
    10 Crazy Things the Right Did This Week - It's been another week of the insane, inane, and outright offensive. It's been another week of the insane, inane, and outright offensive. Here's your top...
    13 hours ago
  • Science Update Podcast - Daily Edition
    Arthropod Roundup - Greater wax moths have evolved the ability to hear sounds at frequencies even their predators can't detect.
    1 day ago
  • Life Cycles // The Truth and The Evidence
    Just How Foxy Is Knoxy? 'Life Cycles' and Amanda Knox. - Much has been written on this now high-profile case. Around a dozen books, including the most recent by Amanda herself, for which Harper Collins reported...
    1 day ago
  • NPR: Science Friday Podcast
    SciFri: Having a Dog May Mean Having Extra Microbes - Houses with dogs had more types of bacteria, say researchers who surveyed surfaces in 40 homes.
    1 day ago
  • NOVA | PBS
    Deadly Crocodiles Down Under - The residents of Australia's Northern Territory share their land with one of the deadliest predators on the planet—the saltwater crocodile. Getting humans ...
    1 day ago
  • Cell 2 Soul: The Humane Health Care Blog
    Odyssey of a Native Son - Since the days of Ulysses, people love to invent road trips. Three years ago, Dylan Dethier, an 18 year-old Mount Greylock graduate, decided to defer admis...
    2 days ago
  • Aphorism Of The Day
    Simplicity - He's the happiest who's happy being nothing.
    2 days ago
  • Docs Blog
    A smoother Drive app for Android - The process of creating and accessing your stuff shouldn’t be, well...a process. Today, the Drive app for Android is getting several improvements to make ...
    2 days ago
  • Fibromyalgia (FM), Chronic Fatigue Syndrome (CFS), and Chronic Myofascial Pain (CMP) Trigger Points
    BODY-WORK: The Anatomy’s ’ Labor of Love Manual therapies you might find helpful for chronic pain. - by Celeste Cooper, RN Chronic pain wears us down regardless of the source. There are many painful disorders recognized in May, and I have discussed ways ...
    3 days ago
  • The Magnolia Blossom Review
    The Long Way by Aaron Redfern - *The Long Way* by Aaron Redfern *About the Book...* “The Long Way” by Aaron Redfern, is a story about the fantastic adventure of Spiff, an al...
    5 days ago
  • this time ~ this space
    Weeds and the Labyrinth - Spring is definitely here and our little dogs are enjoying being able to come and go from outdoors to indoors as the weather is balmy and the slider is ope...
    5 days ago
  • Peripheral Vision - Inner Sights by Lynda Lehmann
    Today's Thought On Art: Elements of The Visual Language - * * *Untitled Gray - c Lynda Lehmann* * * I believe the "logic" of abstract art is purely an internal logic: a logic of the visual language. Some or...
    1 week ago
  • BlogUpp! | the blog
    "Эхо Петербурга", здравствуй! - Here's a warm welcome to all the bloggers of popular radio "*Эхо Москвы в Петербурге*" ("Echo of Moscow" in St. Petersburg), aka "Эхо Петербурга". We are h...
    1 week ago
  • Wisdom Quarterly: American Buddhist Journal
    California is burning! (The Fire Sermon) - Los Angeles Times (*framework.latimes.com*); Wisdom Quarterly *Fire Season* The Springs fire has scorched at least 18,000 acres [of the Santa Monica m...
    2 weeks ago
  • Developer of the First TV – John Logie Baird - What are some of your favorite TV shows? Many of us appreciate a good sitcom series or even have a list of our all time favorite movies? So many brilliant ...
    3 weeks ago
  • ChronicBabe.com News Feed
    National Drug Take-Back Day: Why is it just a day? And why is disposing of medications so hard? - Just a quick question for y'all, sick America. Why do you think it's so freakin' hard for us to dispose of unused/unwanted medications? The Drug Enforcem...
    4 weeks ago
  • my journey to optimum health
    Accountability - I was supposed to go to the gym yesterday, but I didn't. What I did instead, was get off of the subway one stop early so as to enjoy a longer walk home. Th...
    1 month ago
  • MedFlix: Film and the Medical Humanities
    Amour (2012) - This is a beautiful dark film. It is not Hollywood -- definitely not. We have a saying in medicine. "N = 1." One story here -- and everyone's death is...
    3 months ago
  • Barkha Dhar's Blogs on Social Issues
    Desh ki 'Amanat' - *जब जब नारी पे अत्याचार हुआ, हम हाथ पकड़कर बैठे थे* *कोई दर्द नही, कोई भय नही बिन फिक्र के ऐसे लेते थे* * * *जाने कौन घडी मै आज हमे इह्सास हुआ, कि अब चु...
    4 months ago
  • Inform and Encourage
    NCAA Women's Louisiana State Fightin Tigers Sleet Polar Fleece (Dark Purple, Small) Buy - NCAA Women's Louisiana State Fightin Tigers Sleet Polar Fleece (Dark Purple, Small) Sale *Check Price* NCAA Women's Louisiana State Fightin Tigers Sleet Po...
    7 months ago
  • Inspiration
    Body Solid Heavy Duty Utility Stool GST20 Best Reviews - Body Solid Heavy Duty Utility Stool GST20 Real Reviews *Check Price* Body Solid Heavy Duty Utility Stool GST20 Are you looking for *Body Solid Heavy Duty ...
    8 months ago
  • so far so good so what
    Links for 2012-09-14 [del.icio.us] - - Blog: Three New Hands-On Labs for Oracle VM Three new virtualization-related hands-on labs to be presented at Oracle OpenWorld. We hope to h...
    8 months ago
  • Needle in a New Groove
    From Google+ Internet Freedom Movement - Internet Freedom Movement from G+: Read this article by following this link. https://plus.google.com/u/0/115040231829422107651/posts/EwVPriPQF3z If you wa...
    1 year ago
  • 365 pain-free days
    World movement for better pain treatment - Have you heard? There's a global movement going on!  Pain specialists and leaders of medical organizations from all over the world got together in Miami jus...
    1 year ago
  • The Adventures of Young Ladies in Red [ladysinred]
    The Band "Fang" and the Little Black Dress - I want to point out that I'm not really this late to find the fun in Fang. I had heard of them, but I caught this song in a movie The Nameless. Fang is a S...
    1 year ago
  • Home Based Web Business |Starting a Home Based Business,Free Tips,Tools
    บ้านผลบอล แกรนท์ อดัม ไม่ยอมรับความผิดในข้อหาละเมิดความสงบ - บ้านผลบอล บ้านผลบอล แกรนท์ อดัม ไม่ยอมรับความผิดในข้อหาละเมิดความสงบ บ้านผลบอล :แกรนท์ อดัม ผู้รักษาประตูกลาสโกว์ เรนเจอร์ส สโมสรยักษ์ใหญ่ศึกสกอตติช พรีเมี...
    1 year ago
  • The Housebound Writer
    13/04/2010 - ?????? -
    1 year ago
  • Nµ30 Magazine Blog by Close Friend, David Greenberg
    Throwing Punches: Beating Diabetes - Here's a link to my first piece on MadMike'sAmerica. http://madmikesamerica.com/2011/08/throwing-punches-beating-diabetes/ Enjoy, and be sure an leave a c...
    1 year ago
  • TamaloaSa
    Michael Bublé - "Lost" Official Music Video -
    1 year ago
  • FOCUS BRINGS CHANGES
    New website Announcement - Hey guys my new webpage is up, I am just working on it now. I hope you like it, and the new blog is http://getreadingnow.com/wordpress/ site: getreadingno...
    2 years ago
  • Advocates for Pain Relief
    Disabled Vets with PTSD Should be Protected under ADA - *PTSD disabled vets should be protected under the Federal Americans with Disability Act. When I heard about 4 years ago that our troops was routinely being...
    2 years ago
  • It Pays To Diet
    5 Tips for Boosting Your Metabolism Naturally - Making your metabolism work for you in order to lose weight is actually very easy to do. There are ways for you to boost your metabolism without having to ...
    2 years ago
  • Blogger Survey Discussion: Chronic Painer would LOVE support from other painers!
    ladayno213 on 'Chronic Painer would LOVE support from other painers!' - Your doctor's office is supposed to contact your insurance company to get "prior authorization" for any meds or treatments that they usually don't cover....
    3 years ago

"Los Links" for Chronic Pain Patients

  • Dr. Patty Verdugo, Patient Advocate
  • Paul Gileno was using photography to open people's eyes to our plight, before Founding U.S.P.F.
  • Legal Assistance for Chronic Pain Patients.I'm contacting them soon. www.advocacyforpatients.org/
  • WebMD: Pain Management Center
  • http://mindbodyspirithealth82.blogspot.com/
  • American Pain Foundation: Resources, Associations and Doctors for Every Thing you Could Imagine

Some More Links

    • RSDSA - www.rsdsa.org

      NEADS - www.neads.org

      NFMCPA - www.fmcpaware.org

      WOUNDED WARRIOR - www.woundedwarriorproject.org

      NVA - www.nva.org

ARTISTIC POPULISM: EVERYONE IS AN ARTIST & IT'S GREAT THERAPY, TOO

I don't consider myself a great painter, but I usually enjoy it. I'm a much better photographer & sculpter. Two sources in the media convinced me painting shouldn't be about talent. The first was Red Skelton. I was a child, and he would frequently close his show with something uplifting. He also warned, "When you first start painting, you may be using a lot of dark colors. Don't let that dissuade you, because it's a phase, getting rid of negative emotions."

I was around 5, and I took that to heart. The second influence was from Harold and Maude. I composed music (I know the rules, but I could never compose on demand,) and played the flute fairly well. Years later, I went along with the idea of "Just get an instrument and see what happens." I bought an electric guitar, and my dearly departed friend, Ian Moulding, taught me the simplest of Jimi Hendrix. Later, I bought a violin, and a few years ago, I was looking for a cello.

I know I said I had two sources in the media, but there was a third, and probably the most influential, both about art and life. My uncle was Jack Sparling, renowned cartoonist, painter and sculpter. He gave me my first rapidograph. More on him later.

So partake of the painting gadget, even if you don't paint. If I can paint, anyone can, and if you like it, do it. I'm using it here for selfish reasons, while I decide what the most vital info a pain patient needs to know about life, doctors, medicine, and rejection.

I will post this on a separate page; this size is ok for ideas, but not enough freedom.

Paint your heart out: Copy and Paste in your Paint Program in Windows Accessories

Favorite Books related to Pain, CAM and Meditation

  • Zen and the Art of Motorcyle Maintenance

Chat Box: Every Day is a Holiday What is yours Today? Make one UP!

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